SC AD Registry
The South Carolina Alzheimer’s Disease Registry is the oldest and most comprehensive
statewide registry of residents diagnosed with ADRD in the United States. The SC AD
Registry collects demographic and diagnosis-related information and provides prevalence
estimates of ADRD across the state. With formal permissions, the Registry data is
linkable to a variety of social and health-related datasets,. SC AD Registry is one
of three population-based studies supported by the Analysis Core.
Understanding the SC AD Registry
SC AD Registry Lecture by Maggi Miller
The SC AD Registry has maintained a record of diagnosed cases of ADRD in the state of South Carolina since 1988. As of January 1, 2015 (the most current year data are available), 95,899 South Carolinians were living with ADRD. These individuals are identified from several sources when they (or their family members) seek provider services, which ensures that the SC AD Registry captures as many diagnoses as possible. The Registry comprises multiple data sources and is maintained by the Arnold School of Public Health at the University of South Carolina. More information can be found on the SC AD Registry website.
For access to the SC AD Registry, including the Clinical Data Warehouse, CCADMR scientists should log in to the Resources for Project Scientists portal on the CCADMR website and complete the Application for Use of the SC AD Registry Data form. Other users can request access to the SC AD Registry data using the data request form located here: https://cms.sph.sc.edu/survey/529791
For more information on the SC AD Registry, please contact Analysis Core key personnel, Dr. Maggi Miller (firstname.lastname@example.org).